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Hi everyone,
At LUPUS UK National Office we are preparing a report to submit to the Scottish Medicines Consortium (SMC) as part of a consultation into the use of Benlysta (belimumab) for lupus patients. We have produced an online survey to help us collect more information from patients which we can then use for this report. We would like anybody over 18, living in the UK with a diagnosis of SLE to complete the survey if possible. We would especially like anybody who has been given Benlysta treatment to complete it so that we can include their experiences. The survey is available at https://www.surveymonkey.co.uk/r/SMCLUPUSUK and we will be collecting responses until 16th February 2017. Lupus UK have created a page on our website with a few details about this project and a link to the survey - http://www.lupusuk.org.uk/smc-benlysta-consultation/ We would be very grateful if you could help to circulate this survey to your local groups by email and/or social media where possible. P.S. In other news, last week we published the first ‘Topic of the Month’ article for 2017 about diet and healthy eating. You can now read this article at http://www.lupusuk.org.uk/diet-and-healthy-eating/ Best wishes, SWLG
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February 2017
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